Dear Colleagues,

Very warm greetings from the Association for Haemophilia and Allied Disorders-Asia Pacific (AHAD-AP).

AHAD-AP is planning for a virtual workshop on Advanced Comprehensive Care of Haemophilia (CCH) over 3 sessions on 13th, 20th and 27th May 2023, focusing on Nursing on the first session (13th May), Comprehensive Care on the second session (20th May) and musculoskeletal management of haemophilia on the third session (27th May).

Our aims for the workshop are to strengthen and broaden knowledge and skills in diagnosis, assessment and planning care for people with haemophilia (PWH) by a comprehensive care team. The target audience are clinicians, nurses and allied health care professionals involved in the care of haemophilia from across the Asia Pacific region.

In response to recent feedback on our virtual meetings, we have planned short “sharp” sessions with emphasis on core principles of haemophilia management and opportunities for discussion. 

This set of advanced CCH workshops is one of two sets of workshops AHAD-AP organizes and a follow up to the Basic set that was held in March 2022.

This virtual workshop will also function as a premiere to the training workshops that AHAD-AP will be hosting later this year in Bangkok, Thailand.

The basic outline of the virtual workshop is:

Session 1: 
Week 1:
Saturday, 13th May 2023		 Session 2:
Week 2:
Saturday, 20th May 2023		 Session 3:
Week 3:
Saturday, 27th May 2023
Nursing Workshop CCH Workshop MSK Workshop
Topics to be covered:

  • Paediatric and Adult Nursing role in the assessment and triage of a bleed.
  • Planning and organising educational/ awareness activities for the patients and family.
  • Must know for a Haemophilia Nurse- Advances in therapies for Haemophilia.
  • Nurses’ role in genetic counselling.
 Topics to be covered:

  • The Care of the Paediatric Haemophilia Patient in the First Year of Life.
  • Delivering Haemophilia Treatment to Children
  • Basics of Gene Therapy in Haemophilia.
  • Quiz
 Topics to be covered:

  • Target joints and Radiosynoviorthesis.  
  • Iliopsoas bleed management.
  • Total Joint Replacement and post operative therapy.
  • HJHS - Case Scenarios.

If you are a health care provider involved with the care of haemophilia and/or wish to learn and share about the care of haemophilia, kindly register for FREE and participate in the workshop. 

We also encourage you to share this information with your colleagues who might be interested. 

We are looking forward to your attendance and support.

With our warmest wishes,

Dr. Joyce Lam
Dr. Darintr Sosothikul
Dr. Judy Ann David
Penny McCarthy, Haemophilia Nurse
Co-Leads, Advanced CCH Workshops 2023