SCIENTIFIC PROGRAM“Access for all: Towards better haemophilia care in the Asia Pacific region through partnership” |
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September 16, 2022 (Friday) |
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| Time (IST) | HALL A Moderator : Toshirenla Aier, AHAD-AP, Kohima. |
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| 09:50-10:00 AM | Welcome note: AHAD-AP ASM 2022 Shashikant Apte, Sahyadri Speciality Hospital, Pune. Tadashi Matsushita, Nagoya University Hospital, Nagoya. |
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| 10:00-12:00 PM | Plenary Session Chair: Alok Srivastava, Christian Medical College, Vellore. |
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| 10:00-10:20 AM | Global pricing, and access to Emicizumab and EHLs Speaker : Brian O'Mahony, Irish Haemophilia Society, Dublin. |
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| 10:20-10:30 AM | Discussion | ||
| 10:30-10:50 AM | Annual global survey – Current status of AP region Speaker: Ellia Tootoonchian, World Federation of Hemophilia, Montreal. |
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| 10:50-11:00 AM | Discussion | ||
| 11:00-12:00 PM | Adaptation of the WFH guidelines 2020: Possibilities and Challenges Nepal Bishesh Poudyal, Civil Service Hospital, Kathmandu. Sri Lanka Visaka Ratnamalala, National Hospital of Sri Lanka, Colombo. Indonesia Novie Amelia Chozie, Dr. Cipto Mangunkusumo Hospital, Jakarta. Japan Tadashi Matsushita, Nagoya University Hospital, Nagoya. |
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| Time (IST) | Hall A | Hall B | |
| 12:00-12:45 PM | Novo Nordisk Symposium Welcome & Introduction Myriam Dardikh, Novo Nordisk APAC. Stopping the bleed is not enough –musculoskeletal (MSK) management is equally important Moving towards new possibilities to manage haemophilia: Concizumab Discussion |
Chugai Symposium Welcome & Introduction Tadashi Matsushita, Nagoya University Hospital, Nagoya. Efficacy and safety of Emicizumab in Haemophilia A patient with inhibitor-Cases Sharing from Taiwan. Discussion |
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| 12:45-01:00 PM | BREAK | ||
| Hall A: Physician Stream Moderator : Fitri Primacakti, Dr. Cipto Mangunkusumo Hospital, Jakarta. |
Hall B: Nursing Stream Moderator: Lingling Chen, Institute of Hematology and Blood Diseases Hospital, Chinese Academy of Medical Sciences,Tianjin. |
Hall C: Musculoskeletal Stream Moderator: Mridul Makkar, Christian Medical College, Ludhiana. |
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| 01:00-03:00 PM | Chair: Darintr Sosothikul, Chulalongkorn University, Bangkok. |
Chair: Penny McCarthy, Ronald Sawers Haemophilia Centre, Melbourne. |
Chair: Judy Ann David, Christian Medical College, Vellore. |
| 01:00-01:20 PM | Debate
Moderator : M Joseph John, Christian Medical College, Ludhiana. Inhibitors must be eradicated Bleeding control is enough |
Haemophilia Carrier - A hidden Challenge Speaker: Devika Danekhu, Civil Service Hospital, Kathmandu. |
Physiotherapy protocols for management of joint synovitis and arthropathy in a limited resource setting Speaker: Merlyn Tilak, Christian Medical College, Vellore. |
| 01:20-01:30 PM | Rebuttal | Discussion | Discussion |
| 01:30-01:50 PM | AAV-based GT for Haemophilia – Status and Access Speaker-Wolfgang A. Miesbach, Frankfurt University Hospital, Frankfurt. |
Nurse support for healthy independent living Speaker: Lim Chiew Ying, KK Women’s and Children’s Hospital, Singapore. |
Play therapy/ sports activity among children with haemophilia Speaker: NG Shin Huey, KK Women's and Children's Hospital, Singapore. |
| 01:50-02:00 PM | Discussion | Discussion | Discussion |
| 02:00-02:20 PM | Laboratory approach to women and girls with bleeding disorders Speaker: Shrimati Dharmapal Shetty, K.J.Somaiya Hospital & Research Center, Mumbai. |
Nurse-led research in Haemophilia for AP region Speaker: Kuixing Li, Peking Union Medical College Hospital, Beijing. |
Telerehabilitation In Haemophilia- A Model For Teaching, Training As Well As Treatment Speaker: Valentina Begnozzi, Haemophilia & Trombosis Centre, Angelo Bianchi Bonomi, Milan. |
| 02:20-02:30 PM | Discussion | Discussion | Discussion |
| 02:30-02:50 PM | Early Prophylaxis in Haemophilia Speaker: Anupam Dutta, Assam Medical College and Hospital, Dibrugarh. |
Haemophilia Nurse - Challenges and Opportunities
India: Abraham Sunder Singh, Christian Medical College, Vellore. |
Detecting blood in the joint Speaker: N Shyam Kumar, Christian Medical College, Vellore. |
| 02:50-03:00 PM | Discussion | Discussion | Discussion |
| 03:00-03:10 PM | Anamnesis: Recap and highlights Novie Amelia Chozie, Dr. Cipto Mangunkusumo Hospital, Jakarta. |
Anamnesis: Recap and highlights Anjalin D’Souza, Manipal University, Manipal. |
Anamnesis: Recap and highlights Mridul Makkar, Christian Medical College, Ludhiana. |
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September 17 2022, Saturday |
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| Time (IST) | HALL A Moderator : Tadashi Matsushita, Nagoya University Hospital, Nagoya. |
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| 10:00-11:00 AM | Plenary Session Chair: Alison Street, Monash University, Melbourne. |
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| 10:00-10:20 AM | Gene therapy for Haemophilia : What is new? Speaker: Alok Srivastava, Christian Medical College, Vellore. |
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| 10:20-10:30 AM | Discussion | ||
| 10:30-10:50 AM | Management of comorbidities in ageing People with Haemophilia. Speaker: Susie Shapiro, The Oxford Haemophilia and Thrombosis Centre, Oxford. |
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| 10:50-11:00 AM | Discussion | ||
| Hall A: Physician Stream Moderator : Tadashi Matsushita, Nagoya University Hospital, Nagoya. |
Hall B: Laboratory Stream Moderator : Rutvi Dave, Christian Medical College, Vellore. |
Hall C: Musculoskeletal Stream Moderator : Naveen Cherian Thomas, Christian Medical College, Vellore. |
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| 11:00-12:00 AM | Chair: Chean Sophal, National Pediatric Hospital, Phnom Penh. |
Chair: Tulasi Geevar, Christian Medical College, Vellore. |
Chair: Hideyuki Takedani, IMSUT Hospital of the Institute of Medical Science, Tokyo. |
| 11:00-11:20 AM | Low dose prophylaxis
Speaker: Runhui Wu, Beijing Children’s Hospital, Capital Medical University, Beijing. |
Debate
Moderator : Emna Gouider,Aziza Othmana Hospital, Tunis. Chromogenic Assay is essential in the management of Haemophilia A Speaker: Tien Sim Leng, Singapore General Hospital, Singapore. One-stage assay is adequate in the management of Haemophilia A Speaker: Veena Selvaratnam, Hospital Ampang, Ampang. |
Self-reported measures of activities and participation in persons with Haemophilia
Speaker: Pradeep Poonnoose, Christian Medical College, Vellore. |
| 11:20-11:30 AM | Discussion | Rebuttal | Discussion |
| 11:30-11:50 AM | Acquired Haemophilia A Speaker: NG Heng Joo,Singapore General Hospital, Singapore. |
Controversies on Inhibitor Assays Speaker: Sukesh C Nair, Christian Medical College, Vellore. |
Objective measures of physical activity for monitoring people with haemophilia Speaker: Adly Sabbour, School of Physical Therapy, BADR University, Cairo. |
| 11:50-12:00 PM | Discussion | Discussion | Discussion |
| Hall A | |||
| 12:00-12:45 PM | Pfizer Symposium Welcome and Introductions Pantep Angchaisuksiri, Ramathibodi Hospital; Mahidol University, Bangkok. Strategies for prophylaxis versus on-demand treatment with limited resources for haemophilia management Discussion |
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| 12:45-01:00 PM | BREAK | ||
| Hall A: Physician Stream Moderator : Tadashi Matsushita, Nagoya University Hospital, Nagoya. |
Hall B: Laboratory Stream Moderator : Tien Sim Leng, Singapore General Hospital, Singapore. |
Hall C: Musculoskeletal Stream Moderator : Naveen Cherian Thomas, Christian Medical College, Vellore. |
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| 01:00-02:00 PM | Chair: Renchi Yang, Institute of Hematology and Blood Diseases Hospital, Chinese Academy of Medical Sciences and Peking Union Medical College, Tianjin. | Co-Chairs: Emmanuel J Favalora, Institute of Clinical Pathology and Medical Research (ICPMR), Westmead. Jasmita Dass, All India Institute of Medical Sciences, New Delhi. |
Chair: Angela Tulaar, Dr. Cipto Mangunkusumo Hospital, Jakarta. |
| 01:00-01:20 PM | "Better among the best" - Choosing between Clotting Factor Concentrates and Non-Factor replacements Speaker: Liane Khoo, Royal Prince Alfred Hospital, NSW Health Pathology, Sydney. |
Laboratory approach for Patient’s on Emicizumab Speaker: Nongnuch Sirachainan, Ramathibodi Hospital, Mahidol University, Bangkok. |
Role of Clinical gait analysis in haemophilia Speaker: Ta-Sen Wei, Changhua Christian Hospital, Changhua. |
| 01:20-01:30 PM | Discussion | Discussion | Discussion |
| 01:30-01:50 PM | Quiz Quiz Master: M Joseph John, Christian Medical College, Ludhiana. |
Critical appraisal of Bleeding Time in undiagnosed primary haemostatic disorders in developing countries. Speaker: Rutvi Dave, Christian Medical College, Vellore. |
Advances in understanding of haemophilic arthropathy Speaker: Cesar Haddad, Lebanese Association for Haemophilia, Lebanon. |
| 01:50-02:00 PM | Discussion | Discussion | Discussion |
| Hall A | Hall B | ||
| 02:00-03:00 PM | Free Paper Presentations
Co-Chairs: Reduced- dose Emicizumab in Haemophilia A with inhibitors: Real World experience in Sarwak, Malaysia. A retrospective study- inhibitors with patients with haemophilia registered at haemophilia centre, Aluva. Perioperative management and outcomes of circumcision in children with haemophilia. POCUS in Haemophilia. |
Free Paper Presentations
Co-Chairs: Periphery level training for physiotherapists in India- Aluva HTC experience. Benefits of self-administration of factors in haemophilia patients-in a resource-limited setting. Effectiveness of Myofascial therapy and Intermittent prophylaxis on joint health in Haemophilic Arthropathy. Sexual concerns in young adult persons with haemophilia: a survey based cross sectional study. |
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| 03:00-03:10 PM | Anamnesis: Recap and highlights M Joseph John, Christian Medical College, Ludhiana. |
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| 03:10-03:15 PM | Closing Remarks Alison Street, Monash University, Melbourne. |
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SCIENTIFIC PROGRAM |
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| Theme: “Access for all: Towards better haemophilia care in the Asia Pacific region through partnership” | |||
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September 16 2022, Friday |
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| Time (IST) | HALL A | ||
| 09:50-10:00 AM | Welcome note: AHAD-AP ASM 2022 | ||
| 10:00-12:00 PM | Plenary | ||
| 10:00-10:20 AM | Global pricing, and access to Emicizumab and EHLs | ||
| 10:20-10:30 AM | Discussion | ||
| 10:30-10:50 AM | Annual global survey – Current status of AP region | ||
| 10:50-11:00 AM | Discussion | ||
| 11:00-12:00 PM |
Adaptation of the WFH guidelines 2020: Possibilities and Challenges |
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| Nepal | |||
| Sri Lanka | |||
| Indonesia | |||
| Japan | |||
| Hall A | Hall B | Hall C | |
| 12:00-12:45 PM | Sponsored Symposium | Sponsored Symposium | Sponsored Symposium |
| TBD | TBD | TBD | |
| 12:45-01:00 PM | BREAK | ||
| Hall A - Physician stream | Hall B - Nursing stream | Hall C - Musculoskeletal stream | |
| 01:00-03:00 PM | Debate | Haemophilia carrier - A hidden challenge | Physiotherapy protocols for management of joint synovitis and arthropathy in a limited resource setting |
| 01:00-01:20 PM | Debate | Haemophilia carrier - A hidden challenge | Physiotherapy protocols for management of joint synovitis and arthropathy in a limited resource setting |
| Inhibitors must be eradicated. | |||
| Bleeding control is enough. | |||
| 01:20-01:30 PM | Discussion | Discussion | Discussion |
| 01:30-01:50 PM | AAV-based GT for haemophilia – Status and Access | Nurse support for healthy independent living | Play therapy/ sports activity among children with haemophilia |
| 01:50-02:00 PM | Discussion | Discussion | Discussion |
| 02:00-02:20 PM | Women and bleeding disorders: Discussion on case studies | Nurse-led research in Haemophilia for AP region | Telerehabilitation In Haemophilia- A Model For Teaching, Training As Well As Treatment |
| 02:20-02:30 PM | Discussion | Discussion | Discussion |
| 02:30-02:50 PM | Early Prophylaxis in Haemophilia | Haemophilia Nurse- Challenges and Opportunities | Debate: Detecting blood in the joint |
| India | USG the way forward: Yes | ||
| Malaysia | USG the way forward: No | ||
| New Zealand | |||
| 02:50-03:00 PM | Discussion | Discussion | Discussion |
| 03:00-03:10 PM | Anamnesis: Recap and highlights | Anamnesis: Recap and highlights | Anamnesis: Recap and highlights |
September 17 2022, Saturday |
| Time (IST) | HALL A | 10:00-11:00 AM | Plenary |
| 10:00-10:20 AM | Fostering innovative partnership in the AP region for Haemophilia care. | ||
| 10:20-10:30 AM | Discussion | ||
| 10:30-10:50 AM | Management of comorbidities in ageing People with Haemophilia. | ||
| 10:50-11:00 AM | Discussion | ||
| 11:00-12:00 | PM Hall A - Physician stream | Hall B - Laboratory stream | Hall C - Musculoskeletal stream |
| 11:00-11:20 AM | Low dose prophylaxis | Debate: | Self-reported measures of activities and participation in persons with haemophilia |
| Chromogenic Assay is essential in the management of Haemophilia A | |||
| One-stage assay is adequate in the management of Haemophilia A | |||
| 11:20-11:30 AM | Discussion | Discussion | Discussion |
| 11:30-11:50 AM | Acquired haemophilia A | Controversies on Inhibitor Assays | Objective measures of physical activity for monitoring people with haemophilia |
| 11:50-12:00 PM | Discussion | Discussion | Discussion |
| Hall A | Hall B | Hall C | |
| 12:00-12:45 PM | Sponsored Symposium TBD |
Sponsored Symposium TBD |
"Sponsored Symposium TBD |
| 12:45-01:00 PM | BREAK | ||
| 01:00-02:00 PM | Hall A - Physician stream | Hall B - Laboratory stream | Hall C - Musculoskeletal stream |
| 01:00-01:20 PM | Positioning of Plasma Derivatives in replacement Therapy and Recombinant factors as replacement therapy. | Laboratory approach for Patient’s on Emicizumab | Role of Clinical gait analysis in haemophilia |
| PD | Recombinant | ||
| 01:20-01:30 PM | Discussion | Discussion | Discussion |
| 01:30-01:50 PM | Quiz | Critical appraisal of Bleeding Time in undiagnosed primary haemostatic disorders in developing countries. | Advances in understanding of haemophilic arthropathy |
| 01:50-02:00 PM | Discussion | Discussion | Discussion |
| 02:00-03:00 PM | Abstracts presentations | ||
| 03:00-03:10 PM | "Anamnesis: Recap and highlights" | ||
| 03:10-03:15 PM | Closing Remarks | ||
