2nd Annual Scientific Meeting of AHAD-AP with IAHAD
September 16 & 17, 2022

SCIENTIFIC PROGRAM
“Access for all: Towards better haemophilia care in the Asia Pacific region through partnership”

September 16, 2022 (Friday)
Time (IST) HALL A
09:50-10:00 AM Welcome note: AHAD-AP ASM 2022
Shashikant Apte, Haematologist, Sahyadri Speciality Hospital, Pune.
Tadashi Matsushita, Haematologist, Nagoya University Hospital, Nagoya.
10:00-12:00 PM Plenary Session
Chair: Alok Srivastava, Haematologist, Christian Medical College, Vellore.
10:00-10:20 AM Global pricing, and access to Emicizumab and EHLs
Speaker : Brian O'Mahony, CEO, Irish Haemophilia Society, Dublin.
10:20-10:30 AM Discussion
10:30-10:50 AM Annual global survey – Current status of AP region
Speaker: Ellia Tootoonchian, Data Specialist, World Federation of Hemophilia, Montreal.
10:50-11:00 AM Discussion
11:00-12:00 PM Adaptation of the WFH guidelines 2020: Possibilities and Challenges
Nepal
Bishesh Poudyal, Haematologist, Civil Service Hospital, Kathmandu.
Sri Lanka
Visaka Ratnamalala, Haematologist, National Hospital of Sri Lanka, Colombo.
Indonesia
Novie Amelia Chozie, Pediatric Hematology-oncologist, Dr. Cipto Mangunkusumo Hospital, Jakarta.
Japan
Tadashi Matsushita, Haematologist, Nagoya University Hospital, Nagoya.
Time (IST) Hall A Hall B  
12:00-12:45 PM Novo Nordisk Symposium
Welcome & Introduction
Myriam Dardikh, Medical Director Rare Disease,Novo Nordisk APAC.

Stopping the bleed is not enough –musculoskeletal (MSK) management is equally important
Speaker: Judy Ann David,Physiatrist, Christian Medical College, Vellore.

Moving towards new possibilities to manage haemophilia: Concizumab
Speaker: Kingsley Hampton, Consultant Haematologist
Royal Hallamshire Hospital, Sheffield.

Discussion

Chugai Symposium
Welcome & Introduction
Tadashi Matsushita,Nagoya University Hospital, Nagoya.

Efficacy and safety of Emicizumab in Haemophilia A patient with inhibitor-Cases Sharing from Taiwan.
Speaker : Yeu-Chin Chen  , Hemophilia Care & Research Center, Tri-Service General Hospital, Taipei.

Discussion

 
12:45-01:00 PM BREAK
  Hall A: Physician Stream Hall B: Nursing Stream Hall C: Musculoskeletal Stream
01:00-03:00 PM Chair:
Darintr Sosothikul, Haematologist, Chulalongkorn University, Bangkok. 
Chair:
Penny McCarthy, Clinical Nurse Consultant, Ronald Sawers Haemophilia Centre, Melbourne.
Chair:
Judy Ann David, Physiatrist, Christian Medical College, Vellore.
01:00-01:20 PM Debate

Moderator : M Joseph John, Haematologist, Christian Medical College, Ludhiana.

Inhibitors must be eradicated
Speaker: Joyce Lam Ching Mei, Paediatric haematologist, KK Women’s and Children’s Hospital, Singapore.

Bleeding control is enough
Speaker: Ampaiwan Chuansumrit, Pediatrician, Faculty of Medicine Ramathibodi Hospital, Mahidol University, Bangkok.

Haemophilia Carrier - A hidden Challenge
Speaker: Devika Danekhu, Nurse Clinician, Civil Service Hospital, Kathmandu. 
Physiotherapy protocols for management of joint synovitis and arthropathy in a limited resource setting
Speaker: Merlyn Tilak, Physiotherapist, Christian Medical College, Vellore.
01:20-01:30 PM Rebuttal Discussion Discussion
01:30-01:50 PM AAV-based GT for Haemophilia – Status and Access
Speaker-Wolfgang A. Miesbach, Professor of Medicine, Frankfurt University Hospital, Frankfurt. 
Nurse support for healthy independent living
Speaker:  Lim Chiew Ying, Haematology Nurse Clinician, KK Women’s and Children’s Hospital, Singapore.
Play therapy/ sports activity among children with haemophilia
Speaker: NG Shin Huey, Physiotherapist, KK Women's and Children's Hospital, Singapore.
01:50-02:00 PM Discussion Discussion Discussion
02:00-02:20 PM Laboratory approach to women and girls with bleeding disorders
Speaker: Shrimati Dharmapal Shetty, Director, Laboratory Hematology and Clinical Research K.J.Somaiya Hospital & Research Center, Mumbai. 
Nurse-led research in Haemophilia for AP region
Speaker: Kuixing Li, Haemophilia Nurse, Peking Union Medical College Hospital, Beijing.
Telerehabilitation In Haemophilia- A Model For Teaching, Training As Well As Treatment
Speaker: Valentina Begnozzi, Physiotherapist, Haemophilia & Trombosis Centre, Angelo Bianchi Bonomi, Milan.
02:20-02:30 PM Discussion Discussion Discussion
02:30-02:50 PM Early Prophylaxis in Haemophilia
Speaker: Anupam Dutta, Assistant Professor of Medicine, Assam Medical College and Hospital, Dibrugarh.
Haemophilia Nurse - Challenges and Opportunities

India: Abraham Sunder Singh, Haemophilia Nurse Coordinator, Christian Medical College, Vellore.
Malaysia: Zuraida Binti Saari, Haemophilia Nurse, Hospital Ampang, Ampang.
New Zealand: BJ Ramsay, Haemophilia Nurse Specialist, Wellington Hospital, Newtown.

Detecting blood in the joint
Speaker: N Shyam Kumar, Radiologist, Christian Medical College, Vellore. 
02:50-03:00 PM Discussion Discussion Discussion
03:00-03:10 PM Anamnesis:  Recap and highlights
Novie Amelia Chozie, Pediatric Hematology-oncologist, Dr. Cipto Mangunkusumo Hospital, Jakarta.
Anamnesis:  Recap and highlights
Anjalin D’Souza, Haemophilia Nurse Coordinator, Manipal University, Manipal.
Anamnesis:  Recap and highlights
Mridul Makkar, Physiotherapist, Christian Medical College, Ludhiana.
September 17, 2022, Saturday
Time (IST) HALL A
10:00-11:00 AM Plenary Session                                                                                            
Chair: Alison Street, Retired Haematologist, Monash University, Melbourne.
10:00-10:20 AM Non-AAV gene therapy platforms for Haemophilia
Speaker: Alok Srivastava, Haematologist, Christian Medical College, Vellore.
10:20-10:30 AM Discussion
10:30-10:50 AM Management of comorbidities in ageing People with Haemophilia.
Speaker: Susie Shapiro, Consultant Haematologist, The Oxford Haemophilia and Thrombosis Centre, Oxford.
10:50-11:00 AM Discussion
  Hall A: Physician Stream Hall B: Laboratory  Stream Hall C: Musculoskeletal Stream
11:00-12:00 PM Chair:
Chean Sophal, National Pediatric Hospital, Phnom Penh. 
Chair:
Tulasi Geevar, Pathologist, Christian Medical College, Vellore.
Chair:
Hideyuki Takedani, Orthopedician, IMSUT Hospital of the Institute of Medical Science, Tokyo.
11:00-11:20 AM Low dose prophylaxis

Speaker: Runhui Wu, Pediatric Haematologist, Beijing Children’s Hospital, Capital Medical  University, Beijing.

Debate

Moderator : Emna Gouider, Haematologist, Aziza Othmana Hospital, Tunis.

Chromogenic Assay is essential in the management of Haemophilia A

Speaker: Tien Sim Leng, Haematologist, Singapore General Hospital, Singapore.

One-stage assay is adequate in the management of Haemophilia A

Speaker: Veena Selvaratnam, Haematologist, Hospital Ampang, Ampang.

Self-reported measures of activities and participation in persons with Haemophilia

Speaker: Pradeep Poonnoose, Orthopedician, Christian Medical College, Vellore.

11:20-11:30 AM Discussion Rebuttal Discussion
11:30-11:50 AM Acquired Haemophilia A
Speaker: NG Heng Joo, Haematologist, Singapore General Hospital, Singapore.
Controversies on Inhibitor Assays
Speaker: Sukesh C Nair, Pathologist, Christian Medical College, Vellore.
Objective measures of physical activity for monitoring people with haemophilia
Speaker: Adly Sabbour, Dean, School of Physical Therapy, BADR University, Cairo.
11:50-12:00 PM Discussion Discussion Discussion
  Hall A
12:00-12:45 PM Pfizer Symposium
Welcome and Introductions
Pantep Angchaisuksiri, Ramathibodi Hospital; Mahidol University, Bangkok.

Strategies for prophylaxis versus on-demand treatment with limited resources for haemophilia management
Speaker : Darintr Sosothikul, Chulalongkorn University, Bangkok.

Discussion

12:45-01:00 PM BREAK
  Hall A: Physician Stream Hall B: Laboratory Stream Hall C: Musculoskeletal Stream
01:00-02:00 PM Chair: Renchi Yang, Haematologist, Institute of Hematology and Blood Diseases Hospital, Chinese Academy of Medical Sciences and Peking Union Medical College, Tianjin. Co-Chairs:
Emmanuel J Favalora, Principal Hospital Scientist, Institute of Clinical Pathology and Medical Research (ICPMR), Westmead.
Jasmita Dass,Pathologist, All India Institute of Medical Sciences, New Delhi.
Chair: Dr. Angela Tulaar, Physiatrist, Dr. Cipto Mangunkusumo Hospital, Jakarta.
01:00-01:20 PM "Better among the best" - Choosing between Clotting Factor Concentrates and Non-Factor replacements
Speaker: Liane Khoo, Haematologist, Royal Prince Alfred Hospital, NSW Health Pathology, Sydney.
Laboratory approach for Patient’s on Emicizumab
Speaker: Nongnuch Sirachainan, Pediatrician, Faculty of Medicine Ramathibodi Hospital, Mahidol University, Bangkok.
Role of Clinical gait analysis in haemophilia
Speaker: Ta-Sen Wei, Physiatrist, Changhua Christian Hospital, Changhua.
01:20-01:30 PM Discussion Discussion Discussion
       
01:30-01:50 PM Quiz
Quiz Master: M Joseph John, Haematologist, Christian Medical College, Ludhiana.
Critical appraisal of Bleeding Time in undiagnosed primary haemostatic disorders in developing countries.
Speaker: Rutvi Dave, Pathologist, Christian Medical College, Vellore.
Advances in understanding of haemophilic arthropathy
Speaker: Cesar Haddad, Physiotherapist, Lebanese Association for Haemophilia, Lebanon.
01:50-02:00 PM Discussion Discussion Discussion
  HALL A HALL B  
02:00-03:00 PM Abstracts presentations
Co-Chairs:
Joyce Lam Ching Mei, Paediatric haematologist, KK Women’s and Children’s Hospital, Singapore.
Wong Wan Hui, Principal Medical Laboratory Scientist, Singapore General Hospital, Singapore.
Abstracts presentations
Co-Chairs:
Judy Ann David, Physiatrist, Christian Medical College, Vellore.
Penny McCarthy, Clinical Nurse Consultant, Ronald Sawers Haemophilia Centre,Melbourne.
 
03:00-03:10 PM Anamnesis:  Recap and highlights
M Joseph John, Haematologist, Christian Medical College, Ludhiana.
03:10-03:15 PM Closing Remarks
Alison Street, Retired Haematologist, Monash University, Melbourne.