AHAD-AP recognizes the importance of data collection and how documentation of demography, diagnosis and outcomes data is critical for good management of people with bleeding. The AHAD-AP therefore encourages such documentation at each HTC using a standardized format for data collection.

Registry for Association for Haemophilia and Allied Disorders-Asia Pacific (AHAP-AP) is a web-based data system for housing bleeding disorder-related patient data from participating hemophilia treatment centers (HTC) around the AP region. The goal is to develop a standard minimum data set for use by AP, and to investigate data management options using a common platform.

AHAP-AP has developed this registry platform and data management system with the help of CDMC. The registry will assist institutions to collect relevant data. This data whilst being owned by the institution, could be used if agreed to benchmark and assess treatment standards across Asia Pacific.

To know more and get registered, please click this link – https://cmcbiostats.in/ahad-ap/