Welcome to
Association for Haemophilia and Allied Disorders – Asia Pacific
AHAD-AP (previously known as Asia Pacific Haemophilia Working Group) is an independent group of health care professionals involved with haemophilia care from the Asia Pacific region. Its goal is to enhance care for people with haemophilia and other hereditary bleeding disorders in the region through education, training, research and advocacy. It works in collaboration with the World Federation of Haemophilia and is governed by a Steering Committee.
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About AHAD-AP
History
The Association for Haemophilia and Allied Disorders – Asia Pacific (AHAD-AP) was formed in 2014 as an independent
Mission & Objectives
“To improve care for people at risk for haemophilia and other hereditary bleeding disorders in the Asia Pacific Region”
Governance
The AHAD-AP is currently managed by a Steering Committee led by appointed Chair, as well as different standing committees.
Funding
Activities to date have been funded by educational grants from Baxalta, now part of Shire. Diagnostica Stago has fully
Registry
Documentation of demography, diagnosis and outcomes data is critical for good management of people with bleeding
Gallery
Comprehensive Care Workshop at Phnom Penh, Cambodia on Mar 2019 and Basic Coagulation Workshop at Phnom Penh
HTCs in the Asia Pacific Region:
Dhaka
| Address | Bangabandhu Sheikh Mujib Medical University, Department of Hematology Shahbad, Dhaka-1000, Bangladesh |
| Contact & Designation | Dr. A.B.M. Yunus |
| Telephone No | 880-2-861-7118 |
| Will be updated soon | |
| Website | Will be updated soon |
| Services available | Will be updated soon |
Dhaka
| Address | Medical College Hospital Department of Hematology, Shahbagh, Dhaka-1000, Bangladesh |
| Contact & Designation | Dr. Mohiuddin Ahmed Khan |
| Telephone No | +8801715134767 (M) |
| dr.khan59@gmail.com | |
| Website | Will be updated soon |
| Services available | Will be updated soon |
Phnom Penh
| Address | National Pediatric Hospital, Department A, N° 100, Confederation de la Russie Cambodia |
| Contact & Designation | Dr.Chean Sophal (Professor, Pediatrics) |
| Telephone No | 855-12-764-575 |
| sophalces@yahoo.com | |
| Website | NA |
| Services available | – Diagnosis of hemophilia – Treatment of hemophilia – Limited factor replacement therapy |
Siem Reap
| Address | Angkor Hospital for Children, Department IPD, N° 100, Preah Sangreach Tep Vong & Um Chhay Street, Mondul 1, Svay Dangkum P.O. box 50, Siem Reap, Cambodia |
| Contact & Designation | Dr Sing Heng (Pediatrics) |
| Telephone No | +855 (0) 63 963409 |
| hengsing2003@yahoo.com, admin@angkorhospital.org |
|
| Website | https://angkorhospital.org |
| Services available | -Diagnosis of hemophilia -Treatment of hemophilia -Limited factor replacement therapy |
Kashihara
| Address | Nara Hemophilia Center Department of Pediatrics, Nara Medical University 840 Shijo-cho,1458-3. Kashihara City, Japan, 634-8522 |
| Contact & Designation | Prof. Keiji Nogami |
| Telephone No | 81-744-29-8881, 81-744-22-3051 |
| mshima@naramed-u.ac.jp, pediatrics@naramed-u.ac.jp |
|
| Website | http://www.naramed- u.ac.jp/english/eng/hospital.html |
| Services available | Will be updated soon |
Kitakyushu
| Address | North Kyushu Hemophilia Centre Univ. of Occupational and Environmental Health, Japan Dept of Pediatrics 1-1 Iseigaoka, Yahatanishi-ku Kitakyushu City, Japan-807-8555 |
| Contact & Designation | Prof. Akira Shirahata |
| Telephone No | 81-93-603-16112409, 81-93-691-0323 (Emergency) |
| akira-S@med.uoeh-u.ac.jp | |
| Website | Will be updated soon |
| Services available | Will be updated soon |
Bandung
| Address | Bandung General Hospital Bagian Ilmu Kesehatan Anak FKUP/RSHS Jl. Pasteur no. 38 Bandung, Indonesia |
| Contact & Designation | Dr. Angela Tulaar |
| Telephone No | 62-22-203-4426 |
| office@paediatry.jk.unpad.ac.id | |
| Website | Will be updated soon |
| Services available | Will be updated soon |
Kalimantan
| Address | Banjarbaru General Hospital Jl. Palang Merah No. 2, Banjarbaru Kalimantan, Indonesia-70711 |
| Contact & Designation | Dr. Harapan Parlindungan Ringoringo |
| Telephone No | 62-511-477-2380 |
| hprspa@yahoo.com | |
| Website | Will be updated soon |
| Services available | Will be updated soon |
Andhra pradesh
Guntur
Guntur
| Address | Guntur Government Hospital |
| Contact & Designation | Dr Tirupathi Reddy |
| Telephone No | 9440476653 |
| drthirupathireddy@gmail.com | |
| Website | Will be updated soon |
| Services available | Will be updated soon |
Kadapa
| Address | Rajiv Gandhi Institute of Medical Sciences, Kadapa – 516003 Andhra Pradesh. |
| Contact & Designation | Dr. Guruviah (Haematologist) |
| Telephone No | 9502577742 |
| Will be updated soon | |
| Website | Will be updated soon |
| Services available | Will be updated soon |
Ulaanbaatar
| Address | National Center for Transfusion Medicine P.O.Box 96, post office 49,Bayanzurkh district, 3rd Khoroo, Ulaanbaatar, 13381, Mongolia |
| Contact & Designation | Dr. Alimaa Tuya (Hematologist & Clinical pathologist) |
| Telephone No | 976-99284256 |
| alimaatuya@yahoo.com nctmalimaa@gmail.com |
|
| Website | ww.donor.mohs.mn |
| Services available | Outpatient service and laboratory diagnosis |
Ulaanbaatar
| Address | The First Central Hospital of Mongolia
S.Zorig street 2, Sukhbaatar district, Ulaanbaatar city |
| Contact & Designation | Dr. Baljinnyam Purevsuren (Haematologist) |
| Telephone No | +976 95346381 |
| P.baljinnyam@fchm.edu.mn balbirnj@gmail.com |
|
| Website | unte.moh.gov.mn |
| Services available | Inpatient, outpatient service |
Alor Setar
| Address | Hospital Sultanah Bahiyah Km6,Jln Langgar, 05460 Alor Setar Kedah Darul Aman |
| Contact & Designation | Dr Liew Hong Keng (Hematologist) |
| Telephone No | 604-7406233 |
| liewhongkeng@yahoo.com | |
| Website | hsbas.moh.gov.my |
| Services available | 1.Clinic 2.Dental 3.Physio |
Ampang, Selangor
| Address | Ampang Hospital Jalan Mewah Utara, Taman Pandan Mewah, 68000 Ampang Jaya, Selangor, Malaysia |
| Contact & Designation | Dr Veena Selvaratnam |
| Telephone No | 603-42896000 |
| veena_263@yahoo.com | |
| Website | http://hampg.moh.gov.my |
| Services available | 1.Clinic 2.Lab 3.Dental 4.Physio 5.Surgery |
Mandalay
| Address | Mandalay 300 beds Children Hospital Paediatric Haematology and Oncology Unit, 30th Street between 74th and 77th Street Chan Aye Thar San, Mandalay Myanmar-05024 |
| Contact & Designation | Dr Kay Thwe Aung (Pediatrician) |
| Telephone No | +9592007453 |
| kaythweaung.dr@gmail.com | |
| Website | Not available |
| Services available | On demand treatment and Low dose prophylaxis of Factor VIII and Factor IX Physiotherapy unit Dental clinic Orthopedic team Myanmar Haemophilia Patient Association (Mandalay Branch) |
Mandalay
| Address | Mandalay General Hospital |
| Contact & Designation | Dr. Moe Hein Dr Swe Zin Oo |
| Telephone No | Will be updated soon |
| mohein@googlemail.com | |
| Website | Will be updated soon |
| Services available | Will be updated soon |
Kathmandu
| Address | National Academy of Medical Science Bir Hospital, Mahabaudha Kathmandu, Nepal |
| Contact & Designation | Dr. Niraj Kumar Singh, Hematologist |
| Telephone No | +977 9851120361 |
| nirajksingh.dr@gmail.com | |
| Website | Will be updated soon |
| Services available | Day Care services with Factor/Plasma/Blood Infusion Physiotherapy Inpatient Service Operative Services Screening/Advocacy/Training Collaboration with PWH all over Nepal |
Kathmandu
| Address | Silandol, Nagarjung-2 Kathmandu-44620 Nepal |
| Contact & Designation | Dr. Prem Raj Shrestha |
| Telephone No | Will be updated soon |
| premshrestha@gmail.com | |
| Website | www.facebook.com/Racteem |
| Services available | Will be updated soon |
Hyderabad
| Address | Haemophilia Patients Welfare Society Vital Lab. 435 Saddar Hyderabad, Pakistan |
| Contact & Designation | Will be updated soon |
| Telephone No | 92-221-781-127, 92-221-782-268, 92-221-781-381 (Emergency) |
| vitallab@hyd.compol.com | |
| Website | Will be updated soon |
| Services available | Will be updated soon |
Islamabad
| Address | Haemophilia Treatment Center Pakistan Institute of Medical Sciences (PIMS) Children Hospital Islamabad, Pakistan |
| Contact & Designation | Will be updated soon |
| Telephone No | 92-51-926-04502204 |
| tahirazafar@hotmail.com | |
| Website | Will be updated soon |
| Services available | Will be updated soon |
Cebu
| Address | Perpetual Succour Hospital, Hemophilia Center of Cebu, Gorordo Ave Cebu Philippines-6000 |
| Contact & Designation | Dr. Lynda Mae Lepatan |
| Telephone No | +639173230119, +639228256970 |
| Will be updated soon | |
| Website | Will be updated soon |
| Services available | Will be updated soon |
Davao
| Address | Brokenshire Hospital, Mindanao Hemophilia and Bleeding Disorder, Treatment Center Madapo Hill, Davao del Sur Davao,Philippines-8000 |
| Contact & Designation | adjenong@yahoo.com |
| Telephone No | 63-82-2240399, 63-82-2869530 |
| Will be updated soon | |
| Website | Will be updated soon |
| Services available | Will be updated soon |
Singapore
| Address | KK Women’s and Children’s Hospital 100 Bukit Timah Road Singapore-229899 |
| Contact & Designation | Dr Joyce Lam Ching Mei |
| Telephone No | +65 81895298 |
| Joyce.Lam.C.M@singhealth.com.sg | |
| Website | www.kkh.com.sg |
| Services available | Will be updated soon |
Singapore
| Address | National University Hospital 5 Lower Kent Ridge Road Singapore- 119074 |
| Contact & Designation | Dr Koh Pei Lin, (Senior Consultant) |
| Telephone No | +65-67725030 (Paediatric clinic) +65-67795555 (Operator) |
| pei_lin_koh@nuhs.edu.sg | |
| Website | https://www.nuh.com.sg |
| Services available | Diagnosis and management of haemophilia, Laboratory services for Factor assays and inhibitor assays |
Anuradapura
| Address | Anuradapura Teaching Hospital Department of Haematology Harischandra Mawatha Anuradhapura, Sri Lanka |
| Contact & Designation | Dr. K.A.D.S. Jayarathne (Consultant Haematologist) |
| Telephone No | 025 2222261, +94714440046 |
| dilinis74@hotmail.com harshialwis5@gmailcom |
|
| Website | Will be updated soon |
| Services available | Day treatment center for giving factor viii, ix , vii, FEIBA, Vwf+factor viii, Treating on demand , prophylaxis home therapy, ITI, Maintaining patient data base through a computer operator. Lab services – PT INR , APTT , Fibrinogen, mixing studies, factor assay viii, ix , vwf assay , ricof activity , inhibitor screening , inhibitor (Bethesda ) assay |
Badulla
| Address | Badulla Provincial Hospital Department of Haematology Provincial General Hospital, Badulla, Sri Lanka |
| Contact & Designation | Dr.LS.Hettiarachchi (Consultant Haematologist) |
| Telephone No | Will be updated soon |
| sandaruls8@gmail.com | |
| Website | Will be updated soon |
| Services available | Will be updated soon |
Bangkok
| Address | Chulalongkorn University Faculty of Medicine Division of Hematology and Oncology Department of Pediatrics Chulalongkorn Memorial Hospital, Rama IV Road Bangkok, Thailand-10330 |
| Contact & Designation | Assoc. Prof. Darintr Sosothikul, M.D. |
| Telephone No | 66-2-256-4949 |
| dsosthikul@hotmail.com | |
| Website | Will be updated soon |
| Services available | Will be updated soon |
Bangkok
| Address | International Hemophilia Training Center Mahidol University Faculty of Medicine Ramathibodi Hospital, Rama VI Road Bangkok, Thailand-10400 |
| Contact & Designation | Prof. Ampaiwan Chuansumrit M.D |
| Telephone No | 66-2-201-1749 |
| ampaiwan.jua@mahidol.ac.th pakawanwong@hotmail.com |
|
| Website | Will be updated soon |
| Services available | Will be updated soon |
Reports & publications
Reports & publications
Reports
Regional publications
Reports & publications
Asia Pacific Hemophilia Working Group-Its role in enhancing haemophilia care Published as an abstract in ‘Haemophilia’ (The Official Journal of the World Federation of Hemophilia) Authors: Alison Street, Scott Dunkley, Hishamshah Ibrahim, M. Joseph John, Joyce Lam, Sukesh . Nair, Midori Shima, Huyen Tran, Raymond Wong, Renchi Yang, Alok Srivastava (On behalf of APHWG).
The abstract was also presented as an iPoster by Dr. Alison Street on behalf of the APHWG during the WFH Virtual Summit held on June 14-19 2020.
Haemophilia, Volume 26, Issue S4: Article No:MTD‐MP‐032 (322): Read More
iPoster Gallery:Click here to view the iPoster
The abstract was also presented as an iPoster by Dr. Alison Street on behalf of the APHWG during the WFH Virtual Summit held on June 14-19 2020.
Haemophilia, Volume 26, Issue S4: Article No:MTD‐MP‐032 (322): Read More
iPoster Gallery:Click here to view the iPoster
Principles of haemophilia care: The Asia‐Pacific perspective
A review article published in ‘Haemophilia’ (the official journal of World Federation of Haemophilia) in February, 2018 and authored by S. Dunkley, J. C. M. Lam, M. J. John,R. S. M. Wong, H. Tran, R. Yang, S. C. Nair, M. Shima, A. Street, A. Srivastava for the Asia‐Pacific Haemophilia Working Group (AHADAP). Read More
Reports
AHADAP Annual Report 2017-2018 Read More
