Welcome to
Association for Haemophilia and Allied Disorders – Asia Pacific
AHAD-AP (previously known as Asia Pacific Haemophilia Working Group) is an independent group of health care professionals involved with haemophilia care from the Asia Pacific region. Its goal is to enhance care for people with haemophilia and other hereditary bleeding disorders in the region through education, training, research and advocacy. It works in collaboration with the World Federation of Haemophilia and is governed by a Steering Committee.
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Membership in AHAD-AP is Open to all healthcare professionals in the Asia Pacific region who are working and interested in haemophilia and allied disorders.
About AHAD-AP
History
The Association for Haemophilia and Allied Disorders - Asia Pacific (AHAD-AP) was formed in 2014 as an independent
Mission & Objectives
"To improve care for people at risk for haemophilia and other hereditary bleeding disorders in the Asia Pacific Region"
Governance
The AHAD-AP is currently managed by a Steering Committee led by appointed Chair, as well as different standing committees.
Funding
Activities to date have been funded by educational grants from Baxalta, now part of Shire. Diagnostica Stago has fully
Registry
Documentation of demography, diagnosis and outcomes data is critical for good management of people with bleeding
Gallery
Comprehensive Care Workshop at Phnom Penh, Cambodia on Mar 2019 and Basic Coagulation Workshop at Phnom Penh
HTCs in the Asia Pacific Region:
Dhaka
| Address | Bangabandhu Sheikh Mujib Medical University Department of Hematology Shahbad Dhaka-1000 Bangladesh |
| Contact & Designation | Dr. Md. Salahuddin Shah |
| Telephone No | Will be updated soon |
| shah_dr@bsmmu.edu.bd | |
| Website | Will be updated soon |
| Services available | Will be updated soon |
Dhaka
| Address | Dhaka Medical College Hospital Department of Hematology Dhaka-1000 Bangladesh |
| Contact & Designation | Dr. Humayra Nazneen (Haematologist) |
| Telephone No | Will be updated soon |
| humayra.dmc@gmail.com | |
| Website | Will be updated soon |
| Services available | - Diagnostic Services - Outpatient and In-patient management - On demand factor replacement - Limited surgical facility - Physiotherapy facility |
Phnom Penh
| Address | National Pediatric Hospital, Department A, N° 100, Confederation de la Russie Cambodia |
| Contact & Designation | Dr.Chean Sophal (Professor, Pediatrics) |
| Telephone No | 855-12-764-575 |
| sophalces@yahoo.com | |
| Website | NA |
| Services available | – Diagnosis of hemophilia – Treatment of hemophilia – Limited factor replacement therapy |
Siem Reap
| Address | Angkor Hospital for Children Department IPD, N° 100 Preah Sangreach Tep Vong & Um Chhay Street Mondul 1, Svay Dangkum P.O. Box 50 Siem Reap, Cambodia |
| Contact & Designation | Dr Sing Heng (Pediatrics) |
| Telephone No | +855 (0) 63 963409 |
| hengsing2003@yahoo.com, admin@angkorhospital.org |
|
| Website | https://angkorhospital.org |
| Services available | -Diagnosis of hemophilia -Treatment of hemophilia -Limited factor replacement therapy |
Bandung
| Address | Bandung General Hospital Bagian Ilmu Kasehatan Anak FKUP/RSHS Bandung, Indonesia |
| Contact & Designation | Dr. Karmel Tambunan Haematologist |
| Telephone No | 6222203-4426 |
| office@paediatry.jk.unpad.ac.id | |
| Website | - |
| Services available | Will be updated soon |
Jakarta
| Address | Dr. Cipto Mangunkusumo Hospital Jalan Diponegoro 71 Jakarta, Indonesia |
| Contact & Designation | Novie Amelia Chozie, MD, PhD |
| Telephone No | Will be updated soon |
| novie37@gmail.com | |
| Website | Will be updated soon |
| Services available | - Haemostasis laboratory for diagnostic haemophilia A&B,inhibitor, von Willebrand Disease - Radiodiagnostic for ultrasound, CT and MRI for joint assessment or other bleedings in haemophilia patients - Paediatric and adult haematology - Outpatient clinic and ward - Multidisciplinary team including orthopaedic surgery - Medical rehabilitation and physiotherapy - Psychiatry - Dental and oral health - Other specialists as needed |
Lautoka
| Address | Lautoka Hospital Lautoka City Lautoka, P.O Box 65, Lautoka, Fiji |
| Contact & Designation | Dr. Kelera Tubuaniqili, Officer Incharge, Emergency Dept |
| Telephone No | 6660399, ext. 641307 |
| keleratubuaniqili@gmail.com | |
| Website | Will be updated soon |
| Services available | - Assessment of patients - Blood tests including coagulation profile - Infusion of Factor VIII - Sick cases are admitted to medical wards |
Suva
| Address | ICWMH Hospital Suva, Fiji |
| Contact & Designation | Dr. Amit Sewak ED Officer Incharge |
| Telephone No | 3313444 ext. 321501 |
| Amit.Sewak112@gmail.com | |
| Website | Will be updated soon |
| Services available | - Assessment of patients - Blood tests including coagulation profile - Infusion of Factor VIII - Sick cases are admitted to medical wards |
Anuradapura
| Address | Anuradapura Teaching Hospital Department of Haematology Harischandra Mawatha Anuradhapura, Sri Lanka |
| Contact & Designation | Dr. K.A.D.S. Jayarathne (Consultant Haematologist) |
| Telephone No | 025 2222261 +94714440046 |
| dilinis74@hotmail.com | |
| Website | harshialwis5@gmailcom |
| Services available | - Day treatment center for giving factor viii, ix , vii, FEIBA, Vwf+factor viii - Treating on demand , prophylaxis home therapy, ITI - Maintaining patient data base through a computer operator - Lab services - PT INR , APTT , Fibrinogen, mixing studies, factor assay viii, ix , vwf assay , ricof activity , inhibitor screening , inhibitor (Bethesda ) assay |
Badulla
| Address | Badulla Provincial Hospital Department of Haematology Provincial General Hospital, Badulla, Sri Lanka |
| Contact & Designation | Dr.LS.Hettiarachchi (Consultant Haematologist) |
| Telephone No | Will be updated soon |
| sandaruls8@gmail.com | |
| Website | Will be updated soon |
| Services available | Will be updated soon |
Changhua
| Address | Changhua Christian Hospital 135 Nan-Hsiao Street, Changhua 500, Taiwan |
| Contact & Designation | Dr. Ming-Ching Shen & Dr. Ching-Yeh Lin |
| Telephone No | 886-4-7238595 ext.7246 |
| 111710@cch.org.tw 151925@cch.org.tw |
|
| Website | https://www.cch.org.tw/cch-httc/ |
| Services available | Comprehensive Care |
Hualien
| Address | Hualien Tzu Chi Hospital 707, Sec. 3, Chung-Yang Rd. Hualien, Taiwan, 970, R.O.C |
| Contact & Designation | Dr. Yi-Feng Wu |
| Telephone No | 886-3-8561825 |
| wuyifeng43@gmail.com | |
| Website | https://hlm.tzuchi.com.tw/ |
| Services available | Comprehensive Care |
Hiroshima
| Address | Haemophilia Treatment Center Hiroshima University Hospital 1-2-3, Kasumi Minami-ku, Hiroshima Hiroshima city, Japan 734-8551 |
| Contact & Designation | - |
| Telephone No | 81-82-257-5555 |
| teruchan@hiroshima-u.ac.jp | |
| Website | https://www.hiroshima-u.ac.jp/en/hosp/chuoshinryo/ketsuyubyo |
| Services available | - |
Hyogo
| Address | Department of Hematology Hyogo College of Medicine Hospital 1-1, Mukogawa-cho Nishinomiya city Hyogo, Japan 663-8501 |
| Contact & Designation | Dr. Satoshi Higasa Clinical Director, Haematology |
| Telephone No | 81-798-45-6886 |
| parasol@hyo-med.ac.jp | |
| Website | https://www.hosp.hyo-med.ac.jp/service/department/hematology/ |
| Services available |
Alor Setar
| Address | Hospital Sultanah Bahiyah Km6,Jln Langgar, 05460 Alor Setar Kedah Darul Aman |
| Contact & Designation | Dr Liew Hong Keng (Hematologist) |
| Telephone No | 604-7406233 |
| iewhongkeng@yahoo.com | |
| Website | hsbas.moh.gov.my |
| Services available | - Clinic - Dental - Physio |
Ampang, Selangor
| Address | Ampang Hospital Jalan Mewah Utara, Taman Pandan Mewah 68000 Ampang Jaya, Selangor |
| Contact & Designation | Dr Veena Selvaratnam |
| Telephone No | 603-42896000 |
| veena_263@yahoo.com | |
| Website | http://hampg.moh.gov.my |
| Services available | - Clinic - Lab - Dental - Physio - Surgery |
Ulaanbaatar
| Address | National Center for Maternal and Child Health Khuvisgalchdyn Street, Bayangol District Ulaanbaatar city-16060, Mongolia |
| Contact & Designation | Dr. Delgertsetseteg Chilhaasuren, HOD Hematology & Oncology Dr. Tamir Laaganjav, Physician |
| Telephone No | +976-11-362205 +976-99188388 +976-96051000 |
| ehemut@moh.mn | |
| Website | www.ehemut.mn |
| Services available | - Diagnosis and treatment for children with hemophilia, monitoring, factor replacement therapy, and training - Diagnosis, treatment and monitoring of other blood disorders - itp, aplastic anemia, coagulopathy, anemia. - Provide training and advocacy on Diploma program for the specialty in blood and cancer, training for the doctors of 1st and 2nd level hospitals. - Health education for citizens. |
Ulaanbaatar
| Address | National Center for Transfusion Medicine P.O.Box 96, post office 49,Bayanzurkh district, 3rd Khoroo, Ulaanbaatar, 13381, Mongolia |
| Contact & Designation | Dr. Alimaa Tuya (Hematologist & Clinical pathologist) |
| Telephone No | 976-99284256, |
| alimaatuya@yahoo.com nctmalimaa@gmail.com |
|
| Website | www.donor.mohs.mn |
| Services available | - Outpatient service and laboratory diagnosis |
Mandalay
| Address | Mandalay 300 beds Children Hospital Paediatric Haematology and Oncology Unit, 30th Street between 74th and 77th Street Chan Aye Thar San, Mandalay Myanmar-05024 |
| Contact & Designation | Dr Kay Thwe Aung (Pediatrician) |
| Telephone No | +9592007453 |
| kaythweaung.dr@gmail.com | |
| Website | Will be updated soon |
| Services available | - On demand treatment and Low dose prophylaxis of Factor VIII and Factor IX - Physiotherapy unit - Dental clinic - Orthopedic team - Myanmar Haemophilia Patient Association (Mandalay Branch) |
Mandalay
| Address | Mandalay General Hospital |
| Contact & Designation | Dr. Moe Hein Dr Swe Zin Oo |
| Telephone No | Will be updated soon |
| mohein@googlemail.com | |
| Website | Will be updated soon |
| Services available | Will be updated soon |
Kathmandu
| Address | National Academy of Medical Science Bir Hospital, Mahabaudha Kathmandu, Nepal |
| Contact & Designation | Dr. Niraj Kumar Singh, Hematologist |
| Telephone No | +977 9851120361 |
| nirajksingh.dr@gmail.com | |
| Website | Will be updated soon |
| Services available | - Day Care services with Factor/Plasma/Blood - Infusion - Physiotherapy - Inpatient Service - Operative Services - Screening/Advocacy/Training - Collaboration with PWH all over Nepal |
Kathmandu
| Address | Silandol, Nagarjung-2 Kathmandu-44620 Nepal |
| Contact & Designation | Dr. Prem Raj Shrestha |
| Telephone No | Will be updated soon |
| premshrestha@gmail.com | |
| Website | www.facebook.com/Racteem |
| Services available | Will be updated soon |
Islamabad
| Address | Haemophilia Treatment Center Pakistan Institute of Medical Sciences (PIMS) Children Hospital Islamabad, Pakistan |
| Contact & Designation | Will be updated soon |
| Telephone No | 92-51-926-04502204 |
| tahirazafar@hotmail.com | |
| Website | |
| Services available | Will be updated soon |
Karachi
| Address | Aga Khan University Hospital Department of Pathology Stadium Road, P.O. Box 3500 Karachi, Pakistan-74800 |
| Contact & Designation | Dr. M. Khurshid |
| Telephone No | - |
| - | |
| Website | http://www.aku.edu |
| Services available | Will be updated soon |
Singapore
| Address | KK Women’s and Children’s Hospital 100 Bukit Timah Road Singapore-229899 |
| Contact & Designation | Dr Joyce Lam Ching Mei |
| Telephone No | +65 81895298 |
| Joyce.Lam.C.M@singhealth.com.sg | |
| Website | www.kkh.com.sg |
| Services available | Will be updated soon |
Singapore
| Address | National University Hospital 5 Lower Kent Ridge Road Singapore- 119074 |
| Contact & Designation | Dr Koh Pei Lin, (Senior Consultant) |
| Telephone No | +65-67725030 (Paediatric clinic) +65-67795555 (Operator) |
| pei_lin_koh@nuhs.edu.sg | |
| Website | https://www.nuh.com.sg/ |
| Services available | - Diagnosis and management of haemophilia - Laboratory services for Factor assays and inhibitor assays |
Cebu
| Address | Perpetual Succour Hospital Hemophilia Center of Cebu Gorordo Ave Cebu Philippines-6000 |
| Contact & Designation | Dr. Lynda Mae Lepatan |
| Telephone No | +639173230119, +639228256970 |
| Will be updated soon | |
| Website | Will be updated soon |
| Services available | Will be updated soon |
Davao
| Davao | Brokenshire Hospital, Mindanao Hemophilia and Bleeding Disorder, Treatment Center Madapo Hill, Davao del Sur Davao,Philippines-8000 |
| Contact & Designation | Will be updated soon |
| Telephone No | 63-82-2240399 63-82-2869530 |
| adjenong@yahoo.com | |
| Website | Will be updated soon |
| Services available | Will be updated soon |
Bangkok
| Address | Chulalongkorn University Faculty of Medicine Division of Hematology and Oncology Department of Pediatrics Chulalongkorn Memorial Hospital, Rama IV Road Bangkok, Thailand-10330 |
| Contact & Designation | Dr. Darintr Sosothikul (Associate Professor, M.D) |
| Telephone No | 66-2-256-4949 |
| dsosthikul@hotmail.com | |
| Website | Will be updated soon |
| Services available | Will be updated soon |
Bangkok
| Address | International Hemophilia Training Center Mahidol University Faculty of Medicine Ramathibodi Hospital, Rama VI Road Bangkok, Thailand-10400 |
| Contact & Designation | Dr. Ampaiwan Chuansumrit (Professor, M.D) |
| Telephone No | 66-2-201-1749 |
| ampaiwan.jua@mahidol.ac.th | |
| Website | pakawanwong@hotmail.com |
| Services available | Will be updated soon |
Reports & publications
Reports & publications
Reports
Regional publications
Reports & publications
Asia Pacific Hemophilia Working Group-Its role in enhancing haemophilia care Published as an abstract in ‘Haemophilia’ (The Official Journal of the World Federation of Hemophilia) Authors: Alison Street, Scott Dunkley, Hishamshah Ibrahim, M. Joseph John, Joyce Lam, Sukesh . Nair, Midori Shima, Huyen Tran, Raymond Wong, Renchi Yang, Alok Srivastava (On behalf of APHWG).
The abstract was also presented as an iPoster by Dr. Alison Street on behalf of the APHWG during the WFH Virtual Summit held on June 14-19 2020.
Haemophilia, Volume 26, Issue S4: Article No:MTD‐MP‐032 (322): Read More
iPoster Gallery:Click here to view the iPoster
The abstract was also presented as an iPoster by Dr. Alison Street on behalf of the APHWG during the WFH Virtual Summit held on June 14-19 2020.
Haemophilia, Volume 26, Issue S4: Article No:MTD‐MP‐032 (322): Read More
iPoster Gallery:Click here to view the iPoster
Principles of haemophilia care: The Asia‐Pacific perspective
A review article published in ‘Haemophilia’ (the official journal of World Federation of Haemophilia) in February, 2018 and authored by S. Dunkley, J. C. M. Lam, M. J. John,R. S. M. Wong, H. Tran, R. Yang, S. C. Nair, M. Shima, A. Street, A. Srivastava for the Asia‐Pacific Haemophilia Working Group (AHADAP). Read More
Reports
AHADAP Annual Report 2017-2018 Read More
